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    Web Articles about Rare Diseases

    Pediatrician Examining Infant

    What pediatricians should know about bone marrow failure syndromes

    AKIKO SHIMAMURA, MD, PHD | CONDITIONS | FEBRUARY 28, 2017

    ​

    Scientist

    A prescription for bone marrow failure: Diagnose early, monitor often

    AKIKO SHIMAMURA, MD, PHD | EXPERT'S CORNER | JANUARY 4, 2016 

    dr-david-fajgenbaum-super-169.jpg
    Happy Family
    DNA

    This med student was given last rites before finding a treatment that saved his life.

    RYAN PRIOR | CNN | SEPTEMBER 16, 2019

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    Rare disease drove two women on a mission to change FDA drug review process.

    LAUREN KENT | CNN | JULY 19, 2020

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    fcs-melissa-goetz-and-lindsey-sutton-sup

    "It will consume your life. 4 families take on rare diseases.

    GINA KOLATA | New York Times | JULY 7, 2020

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    "The Wilderness of Rare Genetic Diseases and the Parents Navigating It."

    BRENDAN BORRELL | New York Times | JULY 7, 2020

    ​

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